Friday, October 2, 2015. 7 years ago today we were at the Hospital full of hope that our sweet little girl was truly the miracle we believed her to be. What better news was there! As you all already know, Bailey ended up having a disease far worse than OI.

Friday, January 17, 2014. Six months ago today our hearts literally broke. Someday I will get to writing about that whole experience, someday. Today, I miss Paxton. With every cell of my body. I ache to hold his body and kiss his cheeks, ear, on down to his neck; stroke his hair; and feel his hand on my face. I miss seeing him wake up so happy and look towards the window, as if it would tell him what kind of a day it would be. It was so fun for me, too! He was so perfect and peaceful and.

Wednesday, October 18, 2017. As my little chicks grow and begin to leave the nest, family becomes even more precious than ever. She had said a teary goodbye to her animals earlier that morning but needed one last look. A little nervous but ready! She cried and cried.

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We provide race directors and event promoters support for all their race needs whether they are putting on a charity 5k with under 100 people, triathlons with 500 participants, or marathons with 10,000 or more runners. We can assist with all race requirements from registration, marketing, timing, logistics, sponsorship, and execution. Our vision is that people everywhere will positively change their lives through running and fitness.

Protocol Collaboration at the NIH. Protocol Collaboration with the NIH. NGLY1org eliminates the challenges of N-glycanase deficiency. Through research, awareness, and support. Treatments and cures are Positively Possible. Learn more about this rare genetic disorder.